Alzheimer's Care Givers Need Help Too

Congress recently passed legislation that authorizesmust set up their own respite care arrangements.
$289 million over a five-year period for states toThese families receive no help from the government
increase the availability of respite care for familiesor non-profit agencies. They have to pay for these
who care for chronically ill family members.services out of their own pockets. Private health
Respite care provides temporary relief for caregiversinsurance will not cover the cost of respite time. The
who take care of individuals with chronic illnesses andcare is custodial rather than medical.
disabilities. Respite care may take place at home orThe care that is available from most governmental
out of the home. Respite care allows the caregiveragencies is aimed at low-income families or non-
time away from the responsibility of caring forfamily members who care for the elderly. The bill
someone who is sick and shut in.would expand those restrictions so that more
This legislation is designed to provide familyservices would be available for patients at any age or
caregivers a break from their daily responsibilities forincome level.
patients or loved ones who cannot adequately careCongress has not yet appropriated the funds for
for themselves. Each year over 44 million Americansthese expanded offerings. There are other sources
care for an adult family member who has a chronicavailable that can help. Some of these organizations
illness or disability.focus on particular illnesses.
Millions more Americans are charged with theThe Alzheimer's Association - offers respite services
responsibility of caring for younger people who arein several communities and information and referrals in
afflicted with mental retardation or other problems.other communities. The Alzheimer's Association has a
According to Sen. Hillary Clinton, New York Democrat,24-hour help line at 800-272-3900 or you can contact
who is sponsoring this bill with Rep. Mike Ferguson, athem at their website alz.org. Each chapter provides
New Jersey Republican. "American need relief frominformation on some kind of respite care.
the physical and financial toll of caring for their lovedElder Care Locators - People caring for older relatives
ones". This Bill will close the income gap that presentlyshould also contact the Elder Care Locator at
exists.800-677-1116 which is run by the US Administration
The relief for caregivers can be in many variations.on Aging. There are state and local offices on aging
To alleviate the constant stress and financial drain,that also have information on respite care availability.
Congress wants to fill the void in the area of respiteThere is additional help at non-profit Family Caregiver
care for all families who need time awayAlliance at 800-445-8106 or on their website at
torejuvenate from caring for loved ones.caregiver.org. The map on the website indicates
Volunteers are available from agencies that can alsowhere publicly funded services are available.
take patients to adult day care centers where theyRespite care is necessary for families who care for
are supervised for several hours per day. TheseAlzheimer's patients. It is believed that families benefit
services are available but they do not fill the totalas much as the patient. Respite Care helps prevent
need of the family.abuse and neglect. The availability of such care for
Most families who are not considered low incomecaregivers can reduce costly institutionalization.